The life-altering effects of duchenne muscular dystrophy will be explored at Hunter’s Heart DMD Conference on Saturday, Dec. 2, from 10 a.m. to 4 p.m. at Children’s Hospital Los Angeles, 4560 Sunset Blvd., in Los Angeles.
DMD, the most common childhood form of muscular dystrophy, affects males usually between the ages of three-to-five. DMD is characterized by progressive muscle degeneration and weakness due to alterations of a protein that helps keep mescle cells intact.
The event will inform parents, family members, caregivers, educators, and the community about the impact of duchenne muscular dystrophy (DMD) as well as provide resources and updates on new research and treatments.
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“Our mission is to provide education, advocacy, and the best possible support to boys diagnosed with duchenne muscular dystrophy and their families,” said Karen Guillmeno, CEO/executive director of Hunter’s Heart Foundation.
“The panel presenters include Dr. Leigh Maria Ramos-Platt, neurologist; Leslie Parque, education specialist; Dr. Heather Bemis, psychologist; and Aurora Flores, patient engagement liason. Other panelists include an endocrinologist, physical therapist, and social worker, just to name a few, who have hands-on care for boys diagnosed with DMD.”
Guillmeno, whose son has DMD, founded HHF to better “understand this debilitating diagnosis which impacted our lives.” The nonprofit organization aims to raise awareness, fund research, and provide support to families affected by DMD.
The conference is free and open to the public, however seating is limited. To RSVP, visit https://www.eventbrite.com/e/hunters-heart-dmd-conference-tickets-700573944527?aff=oddtdtcreator.
Also, donations can be made via CashApp at $HuntersHeartDMDI or via Zell at (424) 242-9488. To learn more, visit, https://www.hhdmd.org/dmd-annual-conferene or call (323) 826-4437.
